We campaign on behalf of those bereaved by epilepsy
- We raise awareness locally, nationally and internationally of SUDEP, Epilepsy-related deaths and the need to be aware of epilepsy risks
We also work to ensure public policy reflects these issues and strive to make our voices heard. This isn’t possible without your support and involvement
See below how you can get involved in campaigning and policy work – make a positive difference in our journey to make every epilepsy death count!
A national appeal aiming to raise over £1 million over the next four years to tackle young sudden deaths. Join the fight today!
CALL FOR OPENNESS
The Call for Openness campaign is aimed at raising awareness and saving lives. People with epilepsy need to be fully informed if they are to make the right lifestyle choices to reduce their risk of SUDEP.
THE EPILEPSY DEATHS REGISTER
The Epilepsy Deaths Register is a single point for reporting all epilepsy-related deaths. By raising awareness of the register, you can help to gather vital information into SUDEP and epilepsy-related deaths.
An important and powerful way for you to join our campaign is by sharing your story with us; with your help, we are able to shout louder.
We work with policy makers across the UK to make sure the voice of those bereaved by epilepsy is heard.
COFFEE CLUB MEETINGS
The Coffee Club meetings are held around the country by some of our Active Supporters. They are informal way to meet others who have been bereaved by epilepsy.
Find out about our past campaigns and policy work.
Information guides, links and other useful resources you may need when getting involved with campaigning and policy work with us.
REGISTER YOUR INTEREST
Think you might be interested in campaigning and policy work for us? That’s great! Find out more here. You can also find out details about becoming an Active Supporter or Ambassador for the Charity.