People die from an
epilepsy death each week
Nearly half can be prevented
Have you heard of our new campaign?
Knowledge saves lives
Has someone you know died from an epilepsy related death?
Get the help and support you need
We are the only UK charity specialised in supporting and involving people bereaved by epilepsy.
SUDEP Action is dedicated to raising awareness of epilepsy risks and tackling epilepsy deaths, including Sudden Unexpected Death in Epilepsy (SUDEP).
Share your story to help save future lives
My Story is an important and powerful way for you to join our campaign. As the voice of the bereaved for over 20 years, we use information shared with us to good purpose.
Help us reach our
Would you like to run your own fundraising event? or are you looking for fundraising events in your local area? Find out more about how you can help in our Get Involved section.
The Media Hub
Keep up to date with all the latest news and events from SUDEP Action
Key research from SUDEP Action’s landmark Prevent21 Summit, has been published in a leading international epilepsy journal, Epilepsy and Behavior – sharing expertise and recommendations from the event with clinicians and researchers worldwide. The special supplement...